April 19th, 2006
Dad reports:
Hand, Jerry Espenson, returned on last night’s Boston Legal. I can still remember his very first appearance when Mom bolted upright and declared, "He’s got Aspergers!" After several episodes, Boston Legal revealed Jerry’s diagnosis…Aspergers. Sidebar incase Michael reads here. Jerry’s actor, Christian Clemenson, has great credits including Veronica Mars, CSI, Buffy the Vampire Slayer, and The Fisher King, just to name a few.
I thought portraying Aspergers was risky particularly considering how varied it can be from person to peron. However, Boston Legal pulls this off excellently! I hope we get to see many returns of Jerry Espenson! As parents, we often question, "what will our Aspergers son do for a living?" It is nice to see an adult Aspie portrayed in pursuit of a professional and challenging career.
Boston Legal has helped me deal with Tommy. I’ve developed the WWASD method of response.
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April 11th, 2006
Dad reports:
Our experience with Tommy and churches can be summed up as the churches don’t want him. ( slightly related horrible story) Even his grandparent’s church, that formed a class for special needs people and sent people away for training, turned Tommy away by declaring "he can be here but needs an adult to stay with him in the class." That would have been a year or two ago.
This past Sunday Tommy, Evan, Mom and I decided to make an appearance at the grandparent’s church where Sarah, Noah and Amy also attend. West Park Baptist Church has a recent addition called The Hub, their student center, is focused on middle school and high school students. It is a really neat place with Xboxes, foosball, pool, and an auditorium set up like a Hardrock Cafe. We were halfway between the adult Sunday school classroom buildings and The Hub when Mom recommended that Tommy head to the sanctuary and read until classes were done. I suggested he check out The Hub. A class of 5-8 people was being held just outside The Hub’s back entrance.
Kick in teenage awkwardness. Any teenager would be uncomfortable approaching a new situation and new people. Tommy turns his body toward the sanctuary. I stop him and suggest that he simply walk into The Hub’s back door, pass through, exit the front door, and go to the sanctuary. He does! And we head to adult Sunday school.
After Sunday school we head to the sanctuary where we expect to find Tommy but he is AWOL. We give him some time to show up and the service starts so I exit to seek him out. I assume he simply became entranced with a game at The Hub but he is not there. Instead I find Mark who guided Sarah on a recent rock climbing trip and we have some pleasant conversation. He teaches the high schoolers and takes a few minutes to tell me about The Hub and we talk about Tommy. As I return to the sanctuary, I find Tommy sitting outside in a tucked away corner deeply lost in his book (The Cockoo’s Egg by Cliff Stoll
) and I get an inspiration.
I prompt Tommy to follow me about the same time Mom comes out to see if I’ve found him. Tommy and Mom follow me to The Hub where I intend to introduce Tommy to Mark in hopes that Mark will be able to introduce Tommy to a couple of kids his age. When we reach The Hub, I ask for Mark but instead of being told "he is teaching a class" the person interupts the class and pulls Mark out. I felt so bad then before I know it Mark has invited Tommy into the class, Tommy accepts, and Mom and I are left staring blankly at a door behind which Tommy has disappeared with no warnings, no instructions and no plan. Mom, aghast, declares, "that was wrong."
Evan, at 10 months, is spending his first time ever in the nursery. I am not worried about Evan. But I can’t sit still worrying about Tommy. I finally walk over and peek in the window to see Tommy’s book on the table closed, and Tommy not talking but listening intently with no fidgetting!
Afterwards, I apologise to Mark for interupting his class and he insists it was fine. He also claims Tommy did great and goes on to invite him back. I talk further about Tommy’s lack of understanding of social skills and how he might be rude while thinking he is joking. Mark says he can handle it. When I tell him of our past attempts at getting Tommy into church Mark enthusiastically says, "not only do I hope he comes back. I want him to come back." Tommy reports that he had a great time and "wants to attend regularly." Perhaps we will return in two weeks and hope for an equally pleasant experience.
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April 10th, 2006
Mom reports:
Tommy has reached an age and ability level that allows him to identify some of his own sensory needs and problems. Hooray! In the past few months he has taken to eating plastic cups. He doesn’t actually eat them. He just bites down so hard that he actually cracks, breaks and removes chunks of the plastic cup. “Mom, I NEED to bite down really had to focus on what I’m reading or doing.” I understand what he wants but we are running out of cups rapidly, so I need to find another outlet for this teeth clenching or jaw locking vestibular issue.
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April 10th, 2006
Mom reports:
Sometimes Dad and I have to just agree to disagree.
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April 10th, 2006
Dad reports:
We stepped away from posting for a technical reason but we are back.
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March 9th, 2006
Mom reports: Yesterday I finally got Tommy the new pair of jeans he has been begging me to buy. His old jeans were not fitting well and Tommy is a creature of comfort. Tommy smiled when he tried them on and told me they felt great. When I told him that they are four inches smaller than his old jeans, he smiled from earlobe to earlobe and asked me to wash them EVERY night. I told him okay.
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February 21st, 2006
Dad reports:
Sometimes as Tommy heads to school he hollers, "bye!" and I do the same. Today I happened to give him a critical eye as he prepared to walk out the door. His belly protruded from his shirt and his arms buldged in his sleeves that reminded me of Lou Ferrigno about to bust through his clothing. Tommy was dressed but still wearing his sleep shirt (Tommy prefers medical scrubs), and one that needs to go away. As I type this it occurs to me deoderant probably didn’t come into play this morning. I felt relieved that he didn’t go to school that way. He would have received quite a good teasing. It’s 2.7° C outside and I could not convince him to take a coat.
Aspies, as hyper-focused as they can be on something, can be equally as unfocused on other things. We all have walked around oblivious to our fly being open and we joke about forgetting to wear our pants on our wedding day but people point these things out to us and we laugh them away. Would Tommy have eventually noticed or if someone pointed it out would he have just smiled? In either case would he have called home for a shirt or just carried on?
Hygiene is a constant issue with an Aspie (any teenager for that matter). With an Aspie it seems to be more of a battle. More than one bath a day is out of the question. Being told that "you smell funny" is down right insulting and a point for agrument "I do not!" Last night I asked, "when was the last time you brushed your teeth?" To which the reply was, "uuh. I can’t remember." Thank goodness we have the desire for routine on our side. Now as parents we simply have to be diligent police until the habit forms.
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February 20th, 2006
Dad reports:
Tonight’s Knoxville Asperger Support Group meeting (3 people) was better than last month’s (0 people). It was a energetic meeting and we had so much fun talking that we ran almost until the library closed.
Near closing, I try to pay my fines but they can’t make change and although I try to joke with the librarian he is stiff and business-like with me. Tommy walks up to check out two Forbidden Realms books and the librarian perks up and starts asking, "have you read the one by this author about the villian? It’s a much better series!" I waited to see how Tommy reacted and if he would engage. Tommy chose to look at the floor and grunt a little. I must give him credit. He didn’t look as uncomfortable as that sentence implies but obviously didn’t know what to say. In the end, I had to prompt for a "thank you" and he was genuine in his saying so.
That is a classic depiction of an Asperger social situation. However, we have all been in such a situation. Call it shyness. Call it awkwardness. We all can empathise. So why are we not all Aspie? I’d guess that the Aspie feels this was almost all the time.
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February 16th, 2006
Mom reports: Yesterday Tommy’s teacher asked us if Tommy is on the vocational or college track so she can get his class schedule for next year finished. It’s a question that should have been asked last year but I still found it difficult to answer. Lots of people with Aspergers can and do go to college. I just don’t think it is right for Tommy. He would refuse to participate in foundation courses and no professor is going to tolerate Tommy making noises and fidgeting during class. I don’t want to sound like I don’t believe in Tommy. I believe Tommy is incredibly intelligent and we will never really know how smart he is because of his uncooperativeness during standardized testing. I long ago decided that Tommy needed a technical education that would allow him to focus on something that interests him. Unfortunately, his only interests right now are computer games, reading and sleeping. The school gave him an interest survey. It said he should work with airplanes. Since he just finished reading World War II books about airplanes, that is not really a surprise. However, last year he read all the library books about dragons, so last year he would have tested as an anthropologist or science fiction editor. In the end, it should be Tommy’s choice, but he won’t focus on the future. He seems to have no opinion when I try and discuss this with him. Without any input from him, I asked the teacher to pursue the vocational track. I feel sad but convinced it is the right decision. Now if I could just figure out what he would be happy doing. Most people graduate college and wander for years but I am supposed to make my child’s future plans right now?
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February 16th, 2006

This is a 4 day weekend for the children and Tommy has already declared his intent to play online for 36 hours straight. Part of me thinks that is incredibly unhealthy but another part of me knows how important it is to set goals (even silly ones). 
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